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• NORD National Organization for Rare Diseases – USA

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• Vasculitis UK​

• Vasculitis UK Annual General Meeting May 2017

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• Association Wegener et autres Vascularites (France)

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• EURORDIS - The Voice of Rare Disease Patients in Europe

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• Vasculitis Stitching (Netherlands)

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• Vasculitis Foundation USA

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• Vasculitis Foundation Canada

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